Our Roald Dahl Epilepsy Nurse Specialist provides community based clinical assessment and monitoring of children and young people living or attending school within the borough of Newham, aged 0-16 years with a diagnosis of Epilepsy. They support children and young people on their journey towards adulthood, working in partnership with them and their families to provide support that enables them to live a full and enjoyable life.
The Epilepsy Nurse Specialist works with epilepsy specialists and paediatricians to ensure access to community services, and provides information, training and support to the individual, families and carers.
Hours of Operation and Service Provision
The Epilepsy Nursing Service operates Monday to Thursday 0900-1700 at The Appleby Health Centre in Canning Town, with no bank holiday cover.
An answerphone service is available at all times; messages are checked daily during working hours. Professionals and families can contact the Epilepsy Nurse Specialist via the office during working hours on: 0203738 7063.
Referral Criteria and Sources
To see our Epilepsy Nurse specialist children and young people must:
- Have a diagnosis of epilepsy (Note: If a hospital medical practitioner has a strong suspicion of epilepsy, a referral for the specialist nurse will be considered, but referral must come directly from the medical practitioner)
- Must be aged 0-16 years
- Be resident or attend school within the London Borough of Newham.
Referral route
New referrals to the service will be considered by the nurse specialists as they are received against the above criteria and prioritised according to clinical information provided by the referrer as immediate (i.e. requiring telephone assessment within 24 hours) or routine (i.e. requiring an assessment within 6 weeks).
Should you wish to refer to the service please call the office on 0203 738 7063 and discuss with the Epilepsy Nurse Specialist, or click here for information on how to refer to our service.
Useful links for Epilepsy Service
- Epilepsy Society - UK epilepsy charity providing information and support to families living with epilepsy.
- Epilepsy Action - Another UK epilepsy charity who provide information and support to families, run online groups, and fundraise through sports events.